Spastik Multiple Sklerose
Spasticity Multiple Sclerosis
The diagnosis: I have MS – Experience report Living with spasticity.
An insight into the daily life of my spasticity Multiple Sclerosis
Disease Symptoms Part 2 by Ina B..
Learn to cope with your spasticity.
If you have spasticity, you know how hard it can be to manage everyday life. Would you like to know how to better manage your daily life with spasticity? Here in this post, you will find some tips and tricks that can help you manage your life with spasticity. In addition, this experience report should help you understand the problem of spasticity and multiple sclerosis.
The 10 best tips for a full life with spasticity
- Accept yourself.
- Accept your MS disease and the symptoms of your spasticity.
- Change is possible even with spasticity.
- Accept others.
- Accept that spasticity will not go away completely.
- Revolutionize your thinking.
- Accept the environment.
- Accept the imperfection.
- Free your heart.
- Living with spasticity allows you to appreciate the simple things.
What is spasticity?
When you hear the term “spasticity”, you can imagine how it feels, right? It’s like your body is twitching. But what is it exactly? There are different types of spasticity. In the neuropathological sense, spasticity is when a muscle that starts to twitch stops functioning normally. This can also happen in a particular muscle or group of muscles.
However, there are also spasticities that originate from an entire body part. For example, from the legs. Certain regions in the brain control the tension and relaxation of the muscles and thus control our movements. More on this in the further report.
In which neurological disease patterns does spasticity occur?
It is especially typical in MS or after a stroke. Spasticity is a disorder of motor function. Better said, it has something to do with the stimulation of the spastic body.
What is the biggest hurdle in managing spasticity?
To remain mobile in a self-determined manner despite limited mobility.
Stop asking for help. Find your way.
Move more again. The Wheellator is an alternative to the rollator and wheelchair. Find out what the Wheellator can do for you, too. Read the Spastic MS testimonial from Ina B.
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Something about me. My story a life with a spasticity.
I am Ina B. 52 years old and live in Hesse.
Since 2014 I have been struggling with MS and the consequences of spasticity.
I worked at a school for disabled people. At the same time I studied psychology at the university.
At first, everything started as before. But after half a year or so, I noticed that I was having a hard time learning. Since I could not summarize much of what I had learned. So I began to let the paragraphs become smaller and smaller. Until I had to admit to myself that something was wrong with me. I blamed it on overload and many other things.
Why should I stay optimistic? Lack of concentration, problems with memory or attention.
One in four multiple sclerosis patients is affected by one of these cognitive symptoms. But our brain can compensate for the loss of nerve cells that are disrupted by the inflammation in the brain.
Learn to deal with tears. Why is spasticity something I should accept?
In 2015, on vacation, incontinence was added. This was very upsetting. Suddenly it was said that there must be a toilet everywhere in the immediate vicinity. My beloved walks on the beach became a gauntlet. Which made me very sad. Since it still constricts me to this day very much in my everyday life. I have to think in advance whether I still drink something. As a result, where can I go to a toilet?
Try to think positively!
However, today there are many aids for incontinence. Such as pads and others. There is also a key for disabled toilets. The good thing is, it fits everywhere. Even in hospitals, rest stops, etc….
Better understanding incontinence in multiple sclerosis.
Due to a defective function of important nerve pathways, multiple sclerosis can lead to bladder disorders such as an overactive bladder. Then your bladder feels full quickly and you have a frequent urge to urinate.
Normally, a person does not feel the urge to empty the bladder until the bladder has filled up to 200 ml. However, if the corresponding nerves are impaired, even a small amount of urine can trigger a very strong urge to urinate. Affected persons then have to go to the toilet more frequently at night. However, they only ever excrete small amounts of urine. If the bladder sphincter is affected, the bladder empties involuntarily. This is known as incontinence. Due to the bladder emptying disorder in MS, residual urine may remain. This can lead to chronic urinary tract infections.
Below are some of the most common signs of spastic:
Tremors, chills, muscle aches and pains, fatigue, sleep disturbances, and decreased mobility. If you suffer from spasticity, it is important to know what the symptoms are. In other words, what stage is the multiple sclerosis disease in.
Tremor a form of multiple sclerosis spasticity.
Certain regions in the brain control the tension and relaxation of muscles and thus control our movements. This includes uncontrolled tremors, also called tremor.
Another form of ataxic movement disorder in multiple sclerosis is tremor. Tremor is the medical term for a more or less strong trembling. Which mostly affects the hands. It occurs especially when one wants to make specific movements. For example, to drink from a glass. The degree of severity often depends on the individual’s daily form or resilience as well as on the mental condition.
MS patients cite visual disturbances as their first symptom.
Many multiple sclerosis patients cite visual disturbances as their first symptom. This is because multiple sclerosis often triggers optic neuritis. Thus leading to loss of visual acuity due to double vision, limited color vision, or pain when moving the eyes. Seeing double images can also cause dizziness in MS.
Past and present, paralysis is part of everyday life in multiple sclerosis spasticity.
From 2015 to 2016 I had paralysis. Twice from the neck down. Which lasted for two days each time. Twice on the right side. Being able to get up in the morning as usual are processes you never normally think about. Until that time, when my first paralysis occurred. Standing up was no longer possible. That means no voluntary movement was possible anymore. Only the head was movable. Of course it was scary. Very much even, because it shot me many thoughts by the head.
Multiple sclerosis spasticity sickens the body. Frequently asked questions.
What if no one finds you? Will it go away? If so, when? And how can I get help if not? So all that was left was to wait and hope. Again and again I tried to move, until it was finally possible again, phew over. The last partial paralysis so far was in the summer of 2016 on vacation.
Always be on the ball and manage multiple sclerosis spasticity.
So much joy, then the precipitation, an infection, was not allowed on the beach. Something was bubbling inside me, that much was clear, only what. At the almost end of the vacation the paralysis this time left, not again I thought. Before that I had contacted the clinic in HH. I wanted to go home again. So I waited again, this time it resolved a little faster, on the second evening movement was possible again. So I could go back a few days later.
Living with multiple sclerosis means our daily routines are constantly changing?
Then, in the summer of 2017, I got spasticity, which is very troublesome for me. It started at noon. Apparently too much walking, I thought. The legs began to violently develop a life of their own. I could no longer get any rest. Unfortunately, this was intensified by the addition of the arms. The simultaneous onset of balance disorder made it almost impossible for me to walk.
How heat in the summer affects my spasticity.
Also my spasticity does not like heat at all, I start to fidget.
Years have passed since I started living with MS. I have learned a lot about how to live with multiple sclerosis spasticity. So I have talked to many other people. Who have the same disease and I am surprised that there are not the same arguments. It’s probably a good thing because it makes it all seem not so oppressive, like I’m alone with my disease.
I would like to tell here about my experience with the disease.
Acquaintance with the Uhthoff phenomenon.
Uhthoff’s phenomenon refers to a temporary worsening of MS symptoms caused by increased body temperature. It is also referred to as a “pseudo relapse” because, compared to a “real” relapse, the symptoms quickly improve again as soon as the body temperature drops.
Your hands and feet feel furry or numb, suddenly your face tingles? Many MS patients are familiar with these sensitivity disorders. The central nervous system not only sends signals to organs and muscles, it also receives stimuli from the environment via the nerve pathways. Multiple sclerosis can disrupt this transmission of stimuli. As a result, MS patients perceive touch, pain or temperature too strongly, too weakly or not at all.
Suddenly tired and nothing works. Fatigue:
Even if you try to force yourself, it’s no use. What helps is to sleep, to recharge my batteries, then I can create more.
Fatigue is not only one of the most common multiple sclerosis symptoms.
Fatigue means “tiredness” in German. Doctors understand this to mean a pronounced exhaustion that cannot be compared with normal fatigue. Fatigue is therefore not only one of the most common symptoms of multiple sclerosis. It is also perceived by many sufferers as the most stressful symptom. This is because debilitating fatigue can severely limit the quality of life of MS patients.
Swallowing disorders in multiple sclerosis:
A whole 25 muscles are involved in the swallowing process. If MS disrupts this complex interaction, dysphagia occurs. These can be manifested by coughing or swallowing while eating and drinking, as well as by increased salivation. Problems with swallowing can lead to malnutrition and a fluid deficit and pose a risk for pneumonia.
Pain is a common symptom of multiple sclerosis. It can be directly caused by nerve damage. Such as with optic nerve inflammation or paresthesias. However, pain can also be the result of other MS symptoms, such as spasticity.
Sleep disorders in multiple sclerosis:
About 50 percent of MS patients report suffering from sleep disorders. They are usually caused by other symptoms in multiple sclerosis. For example, nighttime urination due to bladder dysfunction or pain can disrupt sleep. But MS can also directly affect the areas in the brain that regulate our wake-sleep rhythm.
Spasticity is the term used to describe increased muscle tension caused by faulty transmission of nerve impulses to the muscles. The muscle tenses too much during activity and the tension cannot be dosed as finely as normal. Sometimes counter-muscles are also tensed, which leads to further problems. It is therefore not unusual if you feel stiff during spasticity and your movements are restricted, your fine motor skills or your coordination do not work as well.
Spasticity can be very painful and severely limit mobility.
Spasticity can occur suddenly and disappear just as suddenly. Rhythmic twitching may also occur in the context of spasticity. These so-called cloni, which often affect one leg, cannot be suppressed at will. Spasticity can also cause other symptoms such as fatigue, bladder and bowel dysfunction, and sexual dysfunction.
Paralysis of the arms or legs is usually mild in the early stages of the disease. However, they may increase in the course of the disease.
Living with multiple sclerosis and a spasticity is hard work, but it's also an honor.
Unfortunately, my symptoms never go away completely. Sometimes they are less, sometimes more. Sometimes this, sometimes that, but always a part remains. In other words, the initial symptoms appear very strongly, regress in parts, but never completely.
This website should help you to understand the problem of spasticity.
Our bonus tip for you:
The mobility aid Wheellator supports people with gait insecurities to remain self-determined mobile.
Limits of safety with commercially available rollators!der Sicherheit mit handelsüblichen Rollatoren!
The rollators I tried were all unsuitable. In Germany, millions of people suffer from gait instability. Most of these people want to be able to walk safely again.
The crucial point is that they often reach the limits of safety with conventional walking aids. Accidents and falls are pre-programmed, since I would fall at best with the cash product due to the balance problems. In my search, I quickly found the Wheellator, which I wanted to take a closer look at.
Are you looking for an alternative for a rollator, wheelchair and a transport chair?
But want to have only 1 device with which you feel safe?
Then Tukimet OY is the right place for you! We offer you the Wheellator as an alternative to the rollator. We are sure that you will like it. First rent the Wheellator as your alternative to a rollator. This way you can see if it fits your needs.
Action: Visit our Wheellator homepage and have a look at our products.
With warm regards Ina
What do we stand for as a rollator manufacturer at Tukimet OY?
As a rollator manufacturer at Tukimet OY, we stand for every person being able to move safely! More precisely, because movement is one of the most important basic elements for life.
With a focus on the needs of end users, we develop and produce high-quality products that make everyday life easier for people and their relatives. Our products not only create a better quality of life, but they also ensure that people can be more personally independent and take more personal responsibility for every step they take.
Movement – Independence – Safety – Quality of life
- What does it mean for people to be able to move safely, independently and at the same time increase their quality of life?
- A safe movement has served for survival for thousands of years! In contrast, a bad movement led to great dangers and even death.
- In other words, a safe movement means life, to have self-determined control over oneself.
- Likewise, life means interacting with other people in society.
- Going to town with them while being an important part in the family and society.
- Being able to independently manage independence and quality of life, challenges and inconveniences in movement. This means to be able to live a happy vital life, until old age, enjoying quality of life with friends and family.
We are open to new ideas and reforms and invest in joint university projects. We see through the eyes and hear through the ears of the customer and are always interested in learning about the wishes and needs of impaired people. Our vision is to create new things and fulfill wishes that help people on their way to more mobility and independence.
We invest in the future. With state-of-the-art machinery and our high quality standards, we guarantee safe and durable products that prove themselves in everyday use.
We have high quality standards and are proud of the fact that our walking aids carry the key label “MADE IN FINLAND”. The key label distinguishes us from competitors and shows our customers and consumers that Tukimet Oy not only focuses on quality, durability and sustainability, but also creates and maintains regional jobs.